Miles' meeting with the allergist went really well. He had already been tested for environmental allergens such as animal dander, pollen, dust, mold, etc. a couple of hospital stays ago. And, of course, he tested positive for everything, with dust and cats at the top of the list. I wanted to rule out any possible food allergies, so I got a referral for him at the same time that Conan was referred. Surprisingly, but not too surprisingly, he did not test positive for any food allergies. Nice! However, Dr. Moffat was pretty concerned about Miles' asthma history. Luckily, he's networked with Primary, so he had all of the Dr.'s notes from hospital visits, and he knows Dr. Uchida, Miles' pulmonologist well, so he had already discussed a potential routine to try to improve things. I really appreciated that he'd already done his research before I got there. When he listened to Miles' lungs, he was a little concerned about what he heard on his left side (and this was a healthy day), so he actually sent us down the hall for a chest x-ray. It ended up being okay. Miles just has a constant rattle in his left lung. At the end of the visit, Dr. Moffat didn't have the most encouraging words. He said something to the effect of, "His x-ray looked just fine. I don't think he has any pneumonia". I said, "Oh, good". Then he continued, "but I you need to understand that this is not good". He basically said that we'd do what we need to do to get the asthma under control, but it would take a long time, and it wasn't going to be easy. Fantastic parting words. He ended up increasing his maintenance meds even more and putting him back on Prednisolone. I've actually already seen an improvement, so hopefully, we'll be able to ween him from some of the steroids. I'm actually not sure where I'm supposed to go from here. Dr. Moffat wanted me to make a follow up with the pulmonologist if Miles' night coughing hadn't stopped within 10 days. It pretty much has, so I'm not sure if and if so, with who I am supposed to follow up with. Probably should've asked Dr. Moffat yesterday, huh?
Which brings us to Conan's appointment. Even though Conan is very young, Dr. Ditty wanted him to see an allergist because 1: just look at our family history 2: he does get a little wheezy now and then & 3: he's got super horrific eczema that we are having a hard time controlling, and eczema usually=allergies. He was tested for both environmental and food allergens. Actually surprisingly, Conan tested negative for all environmental allergens. Dr. Moffat did kind of burst that bubble by telling me that those results would most likely change in about 6 months, he's just really young right now. That would make sense. Miles didn't really react to anything until he was about one. Unlike Miles, Conan did test positive for some food allergens. Eggs and peanuts were the big ones, with a more mild allergy to wheat, carrots, and green beans. There may be more, but with the food they only tested the foods they always test (milk, soy, eggs, wheat, peanuts) and foods he's been exposed to. For now, I have to exclude those foods entirely from his diet. Not too hard since he's just a baby and doesn't eat much anyway, but I do have to read labels, because as I was told, "you'll be surprised at what has eggs and wheat in it". I won't be surprised at what has wheat in it because I was on a wheat free diet all through elementary school. An interesting bit of information: Twizzlers have wheat in them. It did pose a little bit of a problem today. I was at the store looking for something to make for a fun Valentine's meal. Although Conan can't eat a lot, he has gotten used to our crumbs. I wanted to at least find a dessert that he could have some of too. It seems like everything that is wheat-free has eggs in it. I finally came up with maybe a fruit pie with a crust made with rice or oat flour. We'll see. There's got to be something easier and more obvious than that. Anyhow, I'm supposed to introduce a new food to Conan about every 3 days and watch to see if it affects him negatively at all. Today was squash. Hopefully, it works out because Conan really seemed to like it.
In addition to the food stuff, we were put on a strict skin regimen. Poor Coney's skin is so bad. While I was getting him ready to go yesterday. I looked down to see blood just streaming out of his arm. It was just from him scratching an itchy patch. Every morning he wakes up with new cuts on his face where he's clawed himself in his sleep. So far, nothing has really seemed to provide anything other than immediate relief. So, here's our new routine: 1. soak Conan in a lukewarm bath (without actually bathing him) for 20 minutes, including a moist towel on his face for 20 minutes 2. lightly pat dry 3. immediately rub in one steroid cream from the neck down, focusing on particularly bad spots 4. rub in second steroid cream from the neck up 5. immediately following steroid creams, coat his entire body with a heavy moisturizer cream (Eucerin) 6. spot treat bad spots a second, possibly a third time during the day 7. take an oral medication at bed time to prevent itchiness. It's a lot to begin with, but it's all to get the eczema under control, then we'll cut back.
Lastly, Conan does get his own inhaler. Although, the doctor thought that his lungs sounded fine while we were at the office, based on our family history and what I had told him about what we sometimes hear from Conan, he thought it prudent to send us off with an inhaler. Next time we hear any breathing difficulty, we'll give him the inhaler and see how he responds to it. We are returning in about a week and a half to see how things have progressed. I suppose we'll see.
I posted something about Conan's allergies on facebook today, and I had a friend respond by telling me that she was impressed that I was able to stay positive. I had to tell her that I really wasn't positive about it all on purpose. (and I probably don't sound positive at all in this blog since it's kind of the medical update blog) Honestly, at this point, I just can't help but laugh every time we go to the doctor (barring any major ailment, of course). After Miles' diagnosis and surgery, nothing really seems like too big of a deal. And everything now is just another thing on the list. It's probably not very nice to our poor kids, but Ben and I really do chuckle each time something new is added. In regards to our unhealthy genes, I think it was Karri that referred to us as the "perfect storm". Yes, we have doomed our children. Sorry Miles and Conan, that's the price you have to pay for having such awesome parents. Ha. Ha. (especially since we parents are paying all those $prices$ right now)
On to something completely unrelated. While driving home from the pharmacy today, I compiled a list in my head of some recent pet peeves. I think I'll share, quashing anybody's assumption that I am a positive person.
1. people who wait for parking spaces--It doesn't matter if I am the person that is stuck behind you for ten minutes while you wait for someone to load their car to save you from walking an extra 30 feet, if I am the one loading the car while you impatiently wait for my spot, too close to my car for me to back out, or if I am completely on the other side of the parking lot just witnessing, I want to beat you up. The only time that waiting is appropriate is when the lot is full. Side note: the Walmart parking lot is never full; there are more spaces than there are Tooele residents.
2. business establishments that use the word "dollar" in their name, then sell their ware for more than a dollar--Dollar Cuts and Family Dollar, I don't understand you. Is it because you sell your product for dollars? Everyplace uses currency, I think. As far as I know, we've all outgrown the barter system. Maybe we should just change everything to a dollar store. We can call Albertson's, Grocery Dollar. Maybe McDonald's could be Greasy Drive-Through Dollar.
3. fund-raisers that don't actually do anything to raise their funds--Fund-raisers themselves are really annoying, but I understand that that money for your sparkly new drill-team uniform needs to come from someplace. However, holding a sign in front of Walmart saying give me money for our new rugby league is not raising funds, it's begging. Do something, anything, and I'll probably give you something. I would have given them my lecture, but they were raising money for high school rugby. That's football without pads.
4. smacking--Just smacking.
5. people who waive you on at a 4-way stop--Waiving someone on at a 4-way stop throws off the natural balance of things. It's not polite. It's just confusing. The polite thing to do is to go when you are supposed to. There are those rare exceptions when you all arrive at the same time, but those are special circumstances. The rest of the time, JUST GO! This applies double to downed traffic lights.
6..........Sorry, I got distracted by television and forgot (I'm sure that's someone else's pet peeve), so I'll have to get back to you.