Day Four....Barely

Well, it's nice and early on Thursday, and of course, we're still at the hospital. It's only 6:30 am, so certainly we're not discharged yet. And who knows when, or if we will go home today. Miles was doing great yesterday. He was very happy, playing, and to be honest, driving us all nuts. We were able to give him a bath and wash all of the past couple days stinky sickness off. That was really nice 'cause he was getting pretty ripe. The other day, Ben ran his hand through Miles' hair, and it stayed. It was gross and hilarious at the same time. You can check out the pics on facebook. But I digress. He was excited once the bath was over because in order to take it, they had to take off all of his "tethers" (the pulse/ox and such). When he was done, he was able to run around and play outside of his bed. Being tied to a bed is the most frustrating thing when we get stuck here. He is not what you would call a stationary child. Anyhow, he was doing super. No oxygen, and they didn't even hook most of his monitors back up. I was a little confused about why we weren't released last night, but they wanted to be safe and watch him through the night.

And this is why they are the doctors, and I am not. I woke up throughout the night to beeping monitors because his heart-rate kept dropping down into the 60s then going up around 200. His normal hospital (I say that because I don't know if it's different at home) hr is between 115 and approx. 140. I asked one of the nurses about it, and she said that part of it was because the hr was being read just by the pulse/ox on his toe and also because he was sleeping. I feel pretty confident that there's more to it than that though. Additionally, when I got up around 5 am this morning, he was back on oxygen, and his levels were still in the 80s with it. Not good.

A doctor came in and checked him out around 6:15am, right as Ben was leaving for work. He came back in for the check-up. We didn't learn too much. She said that she was going to discuss his stats with the team, and they'd all be back later this morning. With that not so encouraging news, Ben called his boss to let him know that he'd be staying here....at least until we know what's going on. When Ben stepped out of the room, he heard the doctor talking to some nurses about how they expected Miles to be going home today but now it was "just so frustrating" and she didn't know if that would be possible. So, I guess we'll see what happens and what the team has to say.

Hopefully, things will improve once Miles gets up for the day. If not, and we do have to stay, I think that I will go home and get Conan, maybe stay in Tooele tonight, and leave Ben with Miles. I love my little Miles so much and want to stay here, so I know everything that's going on, but I really miss my baby, and I can't leave my 1 1/2 month old for a third day in a row.

I guess that's all for now. I'll be back later today. Oh, and a bit of good news. The CF test came back as unlikely.